RareEmergency.info was created as a collaboration between several non-profits serving the rare disease community.

There are over 7000 rare conditions and that number is growing. This means that no health care provider will be familiar with each and every rare disease. Providing immediate access to specific instructions will reduce complications and save lives. RareEmergency.info will provide information to the community on any and all platforms available to help the rare disease community in times of emergency.

Several individuals and organizations are working to put protocols for rare disease in place.  We are a diverse group of people and welcome anyone who would like to join us. Use the form below to sign up for email updates on our progress.